30. Ulusal Çocuk ve Ergen Ruh Sağlığı ve Hastalıkları Kongresi “Ruhsal Gelişmeden, Ruhsal İyileşmeye: Köklerimiz, Değerlerimiz ve Sınırlarımız, 20 - 22 Mayıs 2021, ss.73
Panel adı: Pediatrik Organ, Doku ve Hücre Transplantasyonlarının Psikososyal Etkileri
Konuşma adı: Pediatrik Kemik İliği Naklinin Psikososyal Etkileri
Sunan isim: Özge GİZLİ ÇOBAN
Hematopoietic stem cell transplantation, also known less specifically as bone marrow transplantation (BMT), is used in the treatment of many life-threatening diseases such as pediatric hematologic malignancies, metabolic disorders and immunologic deficiency diseases in children. Although BMT’s success rates increase, it still carries a significant risk of emotional, social, cognitive, and family functioning. The BMT process affects every member of family unit. Pediatric patients may experience anxiety, depression, low self-esteem, social and behavioral problems, and post-traumatic stress reactions. In addition, BMT patients were found at higher risk for developing delirium than the general hospitalized patient. Children under the age of 5 usually tend to withdraw and distress caused by illness may lead to regression in the child. Separation from the family and fear of being abandoned in a hospital, the biggest concern of school-age children. Adolescent patients interprete the isolation protocol as a loss of freedom, an intrusion and control of their privacy and may react with frustration, anger, depression. Physical side-effects of the treatment regimen such as hair loss, weight gain, hirsutism, and acne may lead to lose self-esteem which could constribute to psychiatric disorders especially for adolescent patients. Siblings are often the best stem cell donor candidates for the patient. The psychological impact of BMT on parents is two-fold because mostly two family members, the ill child and the healthy donor sibling, may be part of the BMT process. BMT was found associated with depression, anxiety, and post-traumatic stress disorder(PTSD) in the parents. Donor siblings were reported to express ambivalence and irritable feelings during tissue‐typing processes and also they experience anger, guilt, withdrawal, and feel responsible for the success of the transplantation. After tissue typing, matched siblings may feel proud of being a donor. However unmatched siblings may experience feelings of jealous, guilt, loneliness and unimportance. The nondonor siblings were found to have signs of depression and PTSD. Interventions with cognitive behavioral technics, improving social skills and emotional well-being of sick child as well as siblings are recommended. It is also crucial to improve communication in family members and decrease parental anxiety and depression. In conclusion, it is important to provide psychosocial support that target the unique needs of these patients and their families.