Balancing autonomy and security over geotracking patients with Alzheimer's using a personalized geotracking system with social support network

Yuce Y. K., GÜLKESEN K. H., Barcin E. N.

3rd International Conference on Ambient Systems, Networks and Technologies (ANT) / 9th International Conference on Mobile Web Information Systems (MobiWIS), Niagara Falls, Kanada, 27 - 29 Ağustos 2012, cilt.10, ss.1064-1072 identifier identifier

  • Yayın Türü: Bildiri / Tam Metin Bildiri
  • Cilt numarası: 10
  • Doi Numarası: 10.1016/j.procs.2012.06.150
  • Basıldığı Şehir: Niagara Falls
  • Basıldığı Ülke: Kanada
  • Sayfa Sayıları: ss.1064-1072
  • Anahtar Kelimeler: Alzheimer's, geotracking, geofencing, social support network, ethics, ELECTRONIC TRACKING DEVICES, DEMENTIA, PEOPLE, CAREGIVERS, INTERVENTIONS, DISEASE, BURDEN
  • Akdeniz Üniversitesi Adresli: Evet

Özet

Systems for geotracking Alzheimer's Disease patients with dementia are reported to raise ethical issues and concerns. Studies stated possible loss of freedom and autonomy for patients, along with violations of their privacy, which may lead to loss of prestige/dignity. In this study, a personalized geotracking system that aims to balance patient security and need for privacy and autonomy is proposed. In addition, the system tries to form and organize a social support network among family caregivers to help each other locating patients during wandering episodes. The system introduces a personalized, four-level temporal geofence based tracking, warning and notification protocol that incorporates a safety check mechanism operating over Global System for Mobile Communications network. It is under development using Java and will be evaluated by using both qualitative and quantitative methods. In this paper, personalization, system architecture and social support network operation principles are presented. (C) 2011 Published by Elsevier Ltd. Selection and/or peer-review under responsibility of [name organizer]