Akademik Veri Yönetim Sistemi
Procedia - Social and Behavioral Sciences, cilt.1, sa.1, ss.1366-1371, 2009 (Scopus)
System of care for children with chronic illnesses and disabling conditions have not recognized adequately the support needs of families whose children have special health care needs or the essential roles that parents play in the lives of their children. There is, however, a growing recognition on the part of professionals that the approach to health care for these children and their families must be changed -that health care must be family-centered. Families are expected to meet the special educational needs of children with learning difficulties and are often seen as the passive recipients of help, advice and support. This article reports the professional views of special education teachers', psychology counselors' and the families of children's with special health care needs about the evaluating and defining to received psychological consultancy support, help, information and the education. The investigation involved interviews with 16 teachers who work on special education field, 8 psychological counselor and the 15 families who have children with special health care needs in Konya-Turkey; but questionnaires and formal videotaping were used as well. Families of Children with Special Health Care Needs (FCSHCN) often do not receive sufficient information and advice and psychological counseling about their child's care or condition and they need more help about these. © 2009.